Taking control:
Getting the best for your child
Once your child has been diagnosed you might start to thinking more about how to get the best out of your healthcare journey and help your child take control of their future. Take action to stay equipped for these conversations.
Whether you are taking your child to visit a specialist or your normal doctor, it is important that you are able to explore how to get the best from your journey, and that your child is thriving in their everyday life.
The tool below allows you to select the right questions for you and your child. You can also print these out.
Get prepared for your own discussion by selecting questions below.
Helpful Resources: Patient Organizations Links
There are a range of patient association groups out there to help you and your child living with a growth disorder. Take a look at some of our recommended partners:
International partner:
ICOSEP:
icosep.org
US partner:
Magic foundation:
https://www.magicfoundation.org/
French partners:
Grandir:
http://grandir.asso.fr/
Silver Russell:
http://silver-russell.fr/association/
Important link with all groups:
https://icosep.org/country-resources/